The existence of this site would not be possible without the contribution of many people who have contributed in different ways, all to achieve the same goal - support, education and the free exchange of ideas for families managing children with PHHI. Unfortunately space prohibits listing all those who have individually contributed to it. If your name isn't listed, please accept the heartfelt thanks and private acknowledgement of those who have benefited by your contribution, even if not publicly noted.

In particular, we would like to thank (in no specific order) :

Craig Weston and Edward Sandoz for having established the first public web-site - www.sur1.com, which enabled us all to meet in cyberspace and grow to the network we have established today (and hope to continue reaching families with PHHI children):
Jim Nestor, for starting the e-groups format, before we lost out previous page, and thereby ensuring that we were all still in contact:
Stuart Lynn for all his help and support, personal and technical, in ensuring the ongoing viability of our new web-site:
Dr Charles Stanley, Dr Paul Thornton, Ms Linda Steinkrauss and the team at CHOP, for giving us support, educating us and taking time to answer all our seemingly endless questions, when we are scattered around the four corners of the globe:
Dr Lydia Aguilar Bryant, for her continuing input and support on matters technical, personal and scientific; and her responses to the challenge of "one hundred plus questions":
All members of our "expert" panel, who have very generously donated their time and expertise to produce the articles provided to further educate families about the unique and complex aspects of PHHI:
Noel Flynn for proof reading all the articles submitted;
MapDesign for helping with the web site;
and last, but by no means least,

All the families which have contributed to increasing the education of each other in many and varied ways, all with the purpose of providing easier ways to manage this condition. Without the sharing of stories and experiences, we are unable to grow in our knowledge of the management of this, and our lives would be all the poorer for never having "met" each other.


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