About
Family-Centered Information About a Rare Condition
SUR1.org is designed as an educational resource about congenital hyperinsulinism, SUR1/ABCC8 and questions families may encounter during specialist care.
Why the SUR1 name matters
SUR1 is a protein encoded by the ABCC8 gene and plays a role in ATP-sensitive potassium channels involved in insulin secretion.
Why specialist care matters
Persistent or severe hypoglycemia can have serious consequences, so diagnosis and treatment should be managed by qualified clinicians familiar with hyperinsulinism.
Why family education matters
Understanding terminology, testing and treatment goals can help caregivers participate more confidently in medical discussions.
Important: General educational information only; not diagnosis or treatment advice.